As we continue our trips to AH and he continues to be in pain our GP's surgery called to say the referral to Great Ormond Street Hospital (GOSH) we applied for back in April had been granted! We were a bit confused and didn't really know how to feel. We're very grateful to AH for everything they have done and are still trying to do, but we felt we couldn't settle until he'd at least been to see the people at GOSH, Just in case theres maybe another dressing or something that could help move on the healing.
He seems to be constantly battling infections, not great considering the only medicines he hates are anti-biotics! Mr Liew has given us some more of the Maxitrol ointment which works great, so this should begin to help.
Hes 9 months old now (Right) and had 13 general anesthetics. Hes still in pain and gets really upset when the dressing has been on a few days and begins to get very wet and uncomfortable.
We have entered him in a local Baby of the Year competition to see him smile and do normal baby things! He's had a couple of stories in his local paper and the story of his christening and first bleed appear in June 11th 'Pick Me Up' magazine (a tad dramatised but you know what these things are like!), all just in the hope that any parent with a niggling doubt about the doctors diagnosis of ''it'll go away'' will be strong enough to seek second opinions and get help elsewhere if necessary. Don't get us wrong, not every baby with a haemangioma needs intervention, but if you feel it does, push for help. These things need dealing with sooner rather than later.
Annette at The Birthmark Support Group (http://www.birthmarksupport.org.uk/) has been an absolutely priceless resource and we will always try and raise funds for them. To donate on behalf of Fox please visit www.justgiving.com/foxbisset
So, on June 8th Fox will travel to London's Great Ormond Street Hospital and we'll see where we go from there...keep following us :o)
Hes 9 months old now (Right) and had 13 general anesthetics. Hes still in pain and gets really upset when the dressing has been on a few days and begins to get very wet and uncomfortable.
We have entered him in a local Baby of the Year competition to see him smile and do normal baby things! He's had a couple of stories in his local paper and the story of his christening and first bleed appear in June 11th 'Pick Me Up' magazine (a tad dramatised but you know what these things are like!), all just in the hope that any parent with a niggling doubt about the doctors diagnosis of ''it'll go away'' will be strong enough to seek second opinions and get help elsewhere if necessary. Don't get us wrong, not every baby with a haemangioma needs intervention, but if you feel it does, push for help. These things need dealing with sooner rather than later.
Annette at The Birthmark Support Group (http://www.birthmarksupport.org.uk/) has been an absolutely priceless resource and we will always try and raise funds for them. To donate on behalf of Fox please visit www.justgiving.com/foxbisset
So, on June 8th Fox will travel to London's Great Ormond Street Hospital and we'll see where we go from there...keep following us :o)
