We took Fox back to GOSH for his latest review on Monday (24th Aug) and Prof Harper was pleased with his progress. the only thing that has changed about his care is to reduce the dressing changes from three down to two per week. We'll try this and if we encounter any problems we can go back to three. I'll continue to send photos to Jane Linward when we do the changes and we're back again in either 4 or 8 weeks (unsure until we get letter!).
The troublesome area that was open for so long is almost gone. Hes still on iron and Propranolol.
I was browsing the web when I came across a haemangioma website www.hemangioma.com, Dr Barry Zide's site. Hes in New York. There was an email address to submit photos and I'm always willing to do this for medical professionals, anything to help teach. Dr Zide rang me first thing the next day to offer removal of Fox's entire birthmark. We're too scared to do anything like this at the minute (process can begin from 15 months of age) while its under control and of course it would need a heck of a lot of fund raising too! We're very grateful for his call though, and will definitely keep it in mind when Fox is bigger/older and the possibility of it becoming a cosmetic issue for him.
Fox celebrated his first birthday this week too. Thank you to everyone who bought him great gifts, he had a great day :o)
So, I'll add some pics too and you can see how great hes doing for yourself :o) Again, just click on photo for full size.
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