Friday 7 August 2009

Update






Its always hard to remember something bad when everything is going well isn't it! Its so hard now to think of Fox screaming every time we changed his dressing, teetering on the edge of sanity, being careful not to fall - watching him scream in absolute agony. Waiting for him to wake up after another anaesthetic. Wondering if it'll be a 'good one'.
Fox is just a different baby to care for now. Hes still taking Propranolol at 8am, 4pm and midnight and iron morning and night but, hes 'able' now, he can do things and be happy. We can, rather gingerly I might add, lift him by both hands and swing him around to make him laugh now. He had his fist bedtime bath yesterday, obviously a bit shallow so not to wet dressings but its still nice to be able to do it, if only for three minutes.
Hes soooo naughty now too! Always in trouble climbing somewhere and running (crawling at speed!) away from us. Anyway, I've babbled now so I'll just put some photos up of this last week on of the Letchworth 50s & 60s festival were Fox proudly sat in his Marmet pram, one of Fox finally being himself and one of his birthmark, the Trimovate had worked great in just 4 weeks, the wound hes had for ages is now nearly all closed.

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