This is the journey of my son, Fox. He was born with a large haemangioma to his right side. I created this blog to help other people going through the same thing and also to urge any parent, if they feel it is necessary, to always try and get the best medical attention they can for their baby while he or she is still young. If you're not happy with what you're hearing, don't be afraid to ask for a second opinion.
Saturday 14 November 2009
Dressings
We hope to shortly put up a video of Fox having his dressing changed and talk through it. It has helped so much having the last two different dressings so I will go through the first dressing, which REALLY helped heal his big wounds, and also practically explain his current dressing. If you have a child with an ulcerated haemangioma at present and you can't get it to heal, this could help. Theres quite a lot to fit in so it could end up being quite long but will keep as short as possible!
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I'm very glad to see that Fox his getting better, and sad to see that it took so much time... Our little girl, Joana, with one month has a similar mark on her chest and another on her face, nose and lips, I will post you some picture soon.
ReplyDeleteWe are flying today to France to start a treatment based on propranolol.
Thank you for sharing all the informations, it is very important for us and many deseperate familie around the world.
Any news we have and I will shared to you!