Wednesday 4 November 2009

Great Ormond Street, 2nd November 2009



We visited the team at GOSH again this week. Fox is keeping the same dressing on so we'll see if it changes over the next 8 weeks. I think we're pretty much aware of how there really is no more we can do now (short of raising £££££s and going to get it removed). I think it will ulcerate continuously until hes much older and its disappeared of its own accord. He is also coming off the Propranolol over the next four weeks. As said before, he didn't start this until he was 9 months old so it was already 'fully formed' in to what it wanted to be so it wouldn't help much. Propranolol needs to be given to very young babies while the haemangioma is still developing. After that he will no longer need any medication daily!
He will have another ultrasound to check up on the small ones on there too next time we visit or if we can get there beforehand. So, all in all, not much change right at the minute. it will be interesting to see how it copes with no Propranolol in 6-8 weeks time.
The pictures show how the wounds have now shaped his skin.

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